A gestão da informação como ferramenta de bem-estar no tratamento de pacientes oncológicos do SUS em João Pessoa sob a perspectiva da pesquisa transformativa do serviço

Abstract

In recent decades, health care has evolved, making treatments even more complex, and requiring an even greater effort to achieve standards such as efficiency and quality. Health systems generate a large amount of information at all times, which makes Information Management (IM) an indispensable tool in communication between professionals, patients and families. In this context, cancer treatments require an even greater control of information, when we consider the complexity, high mortality rates and longevity of treatments. The estimate of the National Cancer Institute for the year 2020 was 626,030 new cases of malignant neoplasm in Brazil, specifically in João Pessoa, the number is 3,090 new cases. The need to manage information for the success and well-being in the treatment of cancer patients demonstrates the relevance of the study, especially when we consider that these treatments are continuous and presuppose specific care for each particular cancer case. The study is based on the perspective of the Service Transformative Research (TSR), which presents itself as an alternative for understanding the promotion of the well-being of people who consume the public health service. This work aims to analyze the perception of users and public health professionals about information management in the treatment of cancer patients in public hospitals in João Pessoa, understanding its role for the well-being of these patients. Therefore, the research was classified as descriptive and exploratory, with a qualitative approach. In the data collection procedure, interviews were conducted based on a semi-structured script with health professionals who work in cancer care at SUS hospitals; in addition, some data collected in informal conversations were recorded in a field diary to provide a better understanding of information management and its consequences for the patients' well-being. Data analysis was based on content analysis, which supported, in addition to the analysis of information management in cancer treatments in public hospitals, perceptions about improvements that can be applied to increase the well-being of patients through improvements in interaction and access to information, providing above all the transformation of vulnerable conditions with a focus on service quality.