Projeto guarda-chuva: sob a perspectiva do paciente, caracterização dos cuidados primários à saúde ofertados ao portador de doença renal crônica terminal, em hemodiálise, na Paraíba

Abstract

Chronic kidney patients on hemodialysis have several clinical, social and psychological problems, in addition to the kidney problem itself. When starting dialysis treatment, the patient usually centers his care in the dialysis clinic and the nephrologist, limiting his care plan to renal dysfunction and its complications, renal replacement therapy and other related clinical problems such as cardiovascular disease. This practice is different from the Ministry of Health's proposal to centralize the care of individuals in primary care, where the family and community health doctor would be the care coordinator. The coordination of care by the Nephrologist ends up segmenting the individual's health care and neglecting other dimensions of the individual, contributing to greater impairment in quality of life and worse screening and control of other pathologies, in addition to the increased risk of iatrogenic diseases. In this sense, a research project was developed that aims to characterize the provision of primary health care for patients with end-stage renal disease, undergoing hemodialysis, in Paraíba, through the patient's perspective. The present master's thesis is a work plan within the umbrella project, and aims to address the health care of women on hemodialysis in the city of João Pessoa, PB and how primary care is offered to this specific population. The thesis is composed of two articles submitted for publication in national literature journals, composed of a review of the current literature on the subject, and an original article, with data collected in the SUS hemodialysis units in the municipality, containing aspects of the perception of women in hemodialysis in relation to the primary care they receive, in addition to a product with information on the prevention of specific neoplasms in females to be distributed in hemodialysis clinics in the city. The original article is a quantitative, descriptive study of a population survey in the form of a structured interview. Women over 18 years of age, with stage G5 chronic kidney disease, undergoing renal replacement therapy, in the hemodialysis modality, undergoing treatment at dialysis clinics located in the city of João Pessoa, PB, were evaluated.