Elaboração de manual direcionado aos cuidadores de usuários com Síndrome de Clippers

Abstract

Introduction: The clinical characteristics of the CLIPPERS syndrome can compromise different aspects of the user, such as vision, gait, postural control, swallowing and emotional lability, which directly affect the lives of their caregivers, being physically and psychologically overloaded. pain, stress and decreased quality of life. Objective: To elaborate a manual directed to the caregivers with information pertinent to CLIPPERS syndrome, main signs and symptoms, postures in the handling with the patient and exercises directed to the caregivers themselves. Materials and Methods: This is a case report carried out with two caregivers of the same individual with CLIPPERS, male and female, with 45 and 50 years of age, respectively. Quality of life was assessed using the WhoQol-Bref scale, pain from Corlett and Bishop's pain diagram, and stress using the Perceived Stress Scale. Results: After applying the quality of life, stress and pain diagram scales, values with significant divergence were obtained for both caregivers, a factor that is related, mainly, to the time of care provided. Conclusion: The elaboration of a manual for caregivers of individuals with CLIPPERS syndrome will be possibly beneficial for quality of life and reduction of pain and stress levels. Thus, it is necessary to apply the manual in a larger number of caregivers as well as follow up after the time of use of it.