Fisioterapia centrada na família de crianças com paralisia cerebral : relato de casos

Abstract

The family action and colaboration are essential for any professional who works with children who have some type of motor development dysfunction, in special, when it comes to children and teenagers with Cerebral Palsy (CP). In this way, positive answers and responsers have been observed when family members act in order to promote a better evolution of the individuals envolved. The research on screen aimed to analyze the participation of the family based on the knowledge acquired during the physical therapy care of children with CP of Child Physiotherapy Service of the Federal University of Paraíba (SFI/UFPB). This was a qualitative, cross-sectional ,descriptive and non-random study using a intentional sample of eleven (11) children with a clear, etiological diagnosis of CP , who were in specialized follow-up at the SFI/UFPB, were sent and applied to parents / guardians, via whatssap with Google semi structured forms containing 43 questions, (20 closed and 23 open), carried out from June to July 2020, with prior authorization from parents and / or guardians carried out from June to July 2020, with the prior authorization of parents and / or guardians, with the signing of the Free and Informed Consent Form as per Resolution no. 466; 2012 from CNS / BR, with registration (CEE, n° 30768720.9.0000.518). The construction of the analyzes started from three structural dimensions: clinical profile and distribution of users; socioeconomic and demographic profile of the user responsible; and perceptions of parents and / or guardians of users from birth, care initiated, activities at home, the child's strengths and weaknesses and daily coping with the pandemic Covid19. It was found that the female figure is predominant within the figure of parents / guardians, being primarily mothers (73%). Regarding the knowledge of the diagnosis, it was observed that it was almost unanimous to a non-coherent response in relation to the diagnosis of the child, with a small number accounting only for the Cid10. It was found as to the educational level that most parents / guardians had only completed high school (55%), considering themselves as a professional in the home (55%), and receiving only a minimum wage (46%), and this may have directly or indirectly collaborating with respect to understanding what the child has. This low level of education may be related to the lack of family interaction within the context of child care. Most parents did not consult means of information for a better knowledge of their child's condition (55%), which also hinders their greater engagement in the child's care and therapeutic work due to this lack of information. With regard to receiving guidance, 91% said they had been informed about the therapeutic activities that could be carried out at home, however the majority (64%) had difficulties with regard to implementing these activities, having no problems with regard to basic child care (Hygiene - 91%, Food - 91% and Recreation - 73%), being different only in terms of school activities (55%). Despite the difficulties, it was found in the questions that these parents / guardians still carry out some past activities / orientations, being careful (64%) with questions of adapting the house for the child's safety and greater independence. The lack of a certain proximity and orientation of the professionals with the parents hinder their greater participation in the rehabilitation process, making them not feel prepared to have a more active and independent participation in their child's daily life and care. The relevance of the study is due to the importance of the family and caregivers for the acquisition and maintenance of the functional independence of children with CP, based on the understanding of their diagnosis and the contribution to the continuity of the guidelines and therapeutic activities at home.