Corpos traçados: um estudo antropológico sobre experiências de mulheres com traço falciforme no estado Paraíba

Abstract

This dissertation is an anthropological study about the relationships between body, race and women's experience with Sickle Cell Trait. It deals with understanding the repercussions of the sickle cell trait in the lives of women of reproductive age (19 to 49 years) in the state of Paraíba and the imbrications in their subjectivities, in social, affective and family relationships, as well as in terms of the experience/effectiveness of their reproductive rights. In addition, it identifies the health care that these women receive in the Unified Health System - SUS, with a view to revealing the subjective universe of women with sickle cell trait. This is an ethnographic research, which had eight interlocutors from six cities in the state of Paraíba. The field research included observation in events and interviews mediated by Information and Communication Technology tools, due to the context of the Coronavirus pandemic, having intersectionality as a category of analysis to reflect on issues related to race, class, gender and generation have constituted in factors that aggravate the experience of women with Sickle Cell Trait. The relevance of this study lies in producing anthropological knowledge from the experience of women, evidencing their experiences with the Sickle Cell Trait, with the health care received and with the reproductive right, being able to subsidize other studies and research, as well as expanding information on TF and on public health policies aimed at people affected by Sickle Cell Disease.